The Plasma Protein Therapeutics Association (PPTA) recognizes World Hemophilia Day, an annual international event sponsored by the World Federation for Hemophilia (WFH) that seeks to raise awareness of people living with inherited bleeding disorders.
Since 1989, World Hemophilia Day has been celebrated annually on April 17. An estimated 1 in 1,000 have a bleeding disorder; yet 75 percent receive inadequate or no treatment. This year’s celebration brings attention to the women and girls in our community who live with a bleeding disorder. The WFH invites everyone to show their support for the millions of women and girls affected by bleeding disorders by sharing their story.
People around the world living with hemophilia and other inherited bleeding disorders rely upon the lifesaving plasma protein therapies produced by PPTA member companies. PPTA works globally to advocate on behalf of patients with these disorders.
PPTA also collaborates with patient organizations in both Europe and the U.S., including the Committee of Ten Thousand (COTT), Hemophilia Federation of America (HFA), the National Hemophilia Foundation (NHF), the World Federation of Hemophilia (WFH) and the European Hemophilia Consortium (EHC), through its stakeholder meetings, publications, and advocacy events. Today, these therapies enable patients with plasma protein disorders to lead active, productive lives. The progress has been remarkable, but there is much work to be done. World Hemophilia Day shines a much-needed spotlight on the important needs of the bleeding disorder community, as well as the need for raising awareness, early diagnosis and effective treatment.
About the Plasma Protein Therapeutics Association
The Plasma Protein Therapeutics Association (PPTA) represents the commercial manufacturers of plasma-derived and recombinant analog therapies, collectively known as plasma protein therapies and the collectors of source plasma used for fractionation. These therapies are used by millions of people worldwide to treat a variety of diseases and serious medical conditions. PPTA member companies produce approximately 80 percent of the plasma protein therapies in the U.S. and 60 percent of those manufactured in Europe. PPTA works globally to:
- Advocate for access to and affordability of therapies for patients
- Engage in constructive dialogue with regulatory agencies
- Administer standards programs that help ensure the quality and safety of plasma collection and manufacturing to protect the health of donors and patients.
- Collaborate with patient advocacy organizations
PPTA Proudly Supports World Hemophilia Day 2017 +
Register now for the 2017 Plasma Protein Forum! +
The 2017 Plasma Protein Forum will be held Tuesday, June 13 - Wednesday, June 14 at the Washington Marriott Georgetown in Washington, D.C.
Registration for the Forum includes access to all general sessions, the exhibit hall and all Forum breaks (you must be registered in order to participate in any of the Forum activities).Read More
The Hilfenhaus Award conferred to Prof. Farkas at the IPPC 2017 +
The 2017 Hilfenhaus Award was bestowed to Professor Henriette Farkas, MD, Ph.D., DSc, during IPPC 2017 for her work related to treating those suffering from Hereditary Angioedema (HAE) and working to improve treatments and patients’ quality of life. She is professor of allergology and clinical immunology at the Hungarian Angioedema Center at Semmelweis University in Budapest, Hungary.Read More