National Organization for Rare Disorders (NORD) is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services.
Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases.
PPTA is Proud to Support Rare Disease Day 2017 +
The Plasma Protein Therapeutics Association (PPTA) is proud to support Rare Disease Day, an annual international event that seeks to raise awareness about rare diseases and the patients and families that are affected by a rare disease.Read More
PPTA Statement on the Documentary “Das Geschäft mit dem Blut” +
PPTA has viewed the documentary "Das Geschäft mit dem Blut" / "Le business du sang" (http://future.arte.tv/fr/le-business-du-sang) that will air on Feb. 21, 2017 in Germany, France, and Belgium on ARTE TV. PPTA strongly objects to the content of the documentary because it is not factual and contains numerous inaccuracies and misinformation.Read More
PPTA Remembers Corey Dubin +
The Plasma Protein Therapeutics Association (PPTA) notes with sadness the passing of Corey Dubin, President Emeritus of the Committee of Ten Thousand and longtime advocate in the hemophilia community.Read More