- Created: Tuesday, 14 April 2015 14:55
April 14, 2015–The Plasma Protein Therapeutics Association recognizes World Hemophilia Day, an annual international event sponsored by the World Federation for Hemophilia that seeks to raise awareness of people living with inherited bleeding disorders.
Since 1989, World Hemophilia Day has been celebrated annually on April 17. This year’s theme is Building a Family of Support.
According to WHF, hemophilia affects approximately 1 in 10,000 people.People around the world living with hemophilia and other inherited bleeding disorders rely upon the lifesaving therapies produced by PPTA member companies. PPTA and its members work tirelessly to ensure the quality and safety of these life-saving therapies. PPTA works globally to advocate on behalf of patients with these disorders.
Additionally, PPTA collaborates with patient organizations in both the U.S. and Europe, through its stakeholder meetings, publications and advocacy events.
PPTA administers standards and certification programs, is engaged in a broad range of regulatory issues, and works to advocate and protect patient access to these therapies.
Jan M. Bult, PPTA President and CEO said, “I am particularly proud of these programs which help deliver safe and effective therapies. Building a family of support for those living with bleeding disorders is a commendable goal.”
Today these therapies enable patients with plasma protein disorders to lead active, productive lives. The progress has been remarkable, but there is much work to be done. World Hemophilia Day shines a much-needed spotlight on the important needs of the bleeding disorder community, as well as the need for raising awareness, early diagnosis and effective treatment.
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